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Data Management Resources

Resources for planning and managing data during a data sharing activity, including technical standards.
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Guide

UK Data Service

Companion Material for Managing and Sharing Research Data Handbook

Guide

UK Data Archive

Create and Manage Data Guides

Guide

European Centre for Disease Prevention and Control

EU Data Quality Monitoring and Surveillance System Evaluation

Website

Facilitate Open Science Training for European Research

FOSTER Open Science Resources

Website

International Household Survey Network

International Household Survey Network Data Management Tools and Guides

Website

UK National Health Service

NHS Digital Information Governance

Policy

UK Controller of Her Majesty's Stationery Office

Open Government Licence for Public Sector Information

Policy

European Centre for Disease Protection and Control

Policy on Data Submission, Access, and Use of Data within TESSy

Website

eScience Reproducibility and Open Science Working Group

Reproducibility and Open Science

Website

UK Anonymisation Network

UK Anonymisation Network Resources

Technical Standards

Standard

Clinical Data Interchange Standards Consortium

CDISC Foundational and Therapeutic Area Standards

Standard

Data Cite

Data Citation Metadata Schema

Standard

Data Documentation Initiative Alliance

Data Documentation Initiative

Standard

International Organization for Standardization

Date and Time Format

Standard

European Centre for Disease Prevention and Control

ECDC Case Definitions

Standard

Health Level 7 International

HL7 Clinical Document Architecture

Standard

World Health Organization

International Statistical Classification of Diseases and Related Health Problems

Standard

Microsoft Corporation

Open Data Protocol

Standard

UN Statistics

Statistical Data and Metadata Exchange - Health Domain (SDMX-HD)

Standard

World Health Organization

WHO Recommended Surveillance Standards