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Project Resources

Chatham House articles, statements on data sharing and selected external research on issues of sharing public health surveillance data and benefits.
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Guide

Chatham House

A Guide to Sharing the Data and Benefits of Public Health Surveillance

.pdf | 3.77MB

Document

Chatham House

Complete List of Key Points to Consider

.pdf | 338.2KB

Document

Chatham House

Complete List of Resources

.pdf | 280.98KB

Statements on Data Sharing

Statement

World Health Organization

Developing Global Norms for Sharing Data and Results during Public Health Emergencies

Statement

World Health Organization

Policy Statement on Data Sharing by the World Health Organization in the Context of Public Health Emergencies

.pdf | 130.64KB

Statement

International Association of National Public Health Institutes

Public Health Surveillance: A Call to Share Data

Statement

Wellcome Trust et al.

Sharing Research Data to Improve Public Health: Full Joint Statement by Funders of Health Research

Statement

Toronto International Data Release Workshop Authors

Toronto Statement on Prepublication Data Sharing

Project Research

Research paper

Matthew Brack and Tito Castillo

Data Sharing for Public Health: Key Lessons from Other Sectors

Comment

Michael Edelstein and David R Harper

Digital Disease Detection

Research paper

Michael Edelstein and Jussi Sane

Overcoming Barriers to Data Sharing in Public Health: A Global Perspective

Research paper

Emma Ross

Perspectives on Data Sharing in Disease Surveillance

Comment

Matthew Brack, et al.

Sharing Surveillance Data for Global Health: Seeking Much-Needed Improvements

External Resources

Research paper

Willem Van Panhuis, et al.

A Systematic Review of Barriers to Data Sharing in Public Health

Research article

UN Data Revolution Group

A World That Counts: Mobilising the Data Revolution for Sustainable Development

Website

WHO Regional Office for Africa

African Health Observatory

Podcast

Ben Goldacre

Ben Goldacre on Open Data

Website

Health Data Collaborative

Data for Health and Sustainable Development

Research paper

John Brownstein, et al.

Digital Disease Detection — Harnessing the Web for Public Health Surveillance

Research paper

Lisa M Lee, et al.

Ethical Justification for Conducting Public Health Surveillance Without Patient Consent

Website

Global Health Network

Ethics and Best Practices in Sharing Individual-Level Research Data

Website

Global Health Network

Global Health Network Methodology Projects

Website

Global Healthcare Innovation Alliance Accelerator

Global Healthcare Innovation Alliance Accelerator

Principles

Wellcome Trust

GloPID-R Principles for Data Sharing during Emergencies

Website

GloPID-R

GloPID-R Data Sharing in Public Health Emergencies

Comment

UK National Data Guardian

Information: To Share or Not to Share? The Information Governance Review

Research

Wellcome Trust

Public Health Research Data Forum

Research paper

Corrado Barbui

Sharing All Types of Clinical Data and Harmonizing Journal Standards

Website

Responsible Data Forum

Sharing Data: What to do with your Processed Data

Research paper

Viroj Tangcharoensathien, et al.

Sharing Health Data: Developing Country Perspectives

Research

Justin Kitzes, et al.

The Practice of Reproducible Research

Policy

Wellcome Trust

Wellcome Trust Policy on Data Sharing

Website

Wellcome Trust

Wellcome Trust Research

Research paper

Anisa Rowhani-Farid, et al.

What Incentives Increase Data Sharing in Health and Medical Research? A Systematic Review

Research article

Bram de Jonge

What is Fair and Equitable Benefit-Sharing?

Research paper

Ben Goldacre, et al.

WHO Consultation on Data and Results Sharing During Public Health Emergencies

Additional Resources

Document

Chatham House

Acknowledgements

.pdf | 51.75KB

Document

Chatham House

Image Credits

.pdf | 52.18KB